President, Founder and Chief Health Officer
Foundation for Sickle Cell Disease Research
Hollywood, Florida, United States
For the past 20 years, I have identified, created and evaluated innovative strategies that have led to accessible, high-quality and cost-effective care for individuals with sickle cell disease. I created the first sickle cell disease (SCD) outpatient program for the 3rd largest safety-net hospital in the nation, where I implemented evidence-based standards of care. In addition, I created a quality improvement and monitoring system for SCD. The program was certified by the Joint Commission for Disease-Specific Certification three consecutive times. After the successful implementation of an SCD program in a hospital outpatient setting, I created a standalone dedicated center for SCD in the community, the Foundation for Sickle Cell Disease Research (FSCDR). The FSCDR is centrally located between the three-county metropolitan area in the southern district of Florida. It is comprised of a multi-specialty clinic, which has a hematologist-oncologist, family nurse practitioner, registered nurses, medical assistants, and a network of multi-specialty providers. Since 2016 through a contract with Florida Department of Health of Health, Office of Minority Health, FSCDR has provided care coordination for 1087 individuals with sickle cell disease. The FSCDR also serves as a medical home to more than 600 individuals with SCD. I have served in several sickle cell disease leadership positions including the Chief Medical Officer of the Sickle Cell Disease Association of America, Senior Medical Advisor to the Centers for Disease Prevention and Control, a member of the National Institutes of Health, National Heart, Lung and Blood Advisory Council, and a member of 2014 Expert Panel for the evidence-based management of sickle cell disease for the National Institutes of Health, National Heart, Lung, and Blood Institute. We have had unprecedented success recruiting, enrolling, and retaining patients in clinical trials.
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Welcome + The State of Sickle Cell Disease
Friday, June 16, 2023
12:00 PM – 12:45 PM East Coast USA Time
Welcome From FSCDR's President and Chief Health Officer
Friday, June 16, 2023
12:00 PM – 12:10 PM East Coast USA Time
The Sunshine Sickle Cell Project
Sunday, June 18, 2023
2:15 PM – 2:30 PM East Coast USA Time
Biomarker Response to Administration of Adakveo in a “Real World” Clinical Setting
Sunday, June 18, 2023
3:45 PM – 4:00 PM East Coast USA Time