Co-Founder and Director
Sickle Cell Medical Advocacy Inc.
Orlando, Florida, United States
Simone Uwan MD
Co-Founder and CEO
Sickle Cell Medical Advocacy Inc.
https://www.sicklecellmedicaladvocacy.org
Simone Eastman Uwan MD (known to the Sickle Cell community as Dr. Simone) was born in Guyana South America and migrated to the United States with her family when she was 14 years old. She had a love for science and math and attended “Clara Barton High School for Health Professions” in Brooklyn, NY. She was awarded a scholarship to attend Barnard College at Columbia University in Manhattan, NY. There she majored in biology and pre-medical Sciences. It was during her college years that she was diagnosed with Sickle Cell disease, even though she had active symptoms all her life.
After graduating from college Dr. Uwan moved to northern California where she was accepted to Stanford University school of medicine. There she won both a “Medical Scholars” award and a “Pfeiffer Scholars” award for research in red blood cell disorders with the Stanford Hematology Research Department. Dr. Simone then did an internship in 1997 at Children’s Hospital Oakland Research Institute studying early signs of Acute Chest Syndrome in the blood of patients with Sickle Cell disease. Also, for several summers during medical school during the 1990s, Doctor Simone participated in the Northern California Comprehensive Sickle Cell disease camp, where she mentored patients and was a part of the Medical Staff caring for her Sickle Cell community.
She was accepted to a Stanford affiliated Family Practice residency program in 2001, and during her senior year of residency she worked treating patients at the Comprehensive Center for Sickle Cell disease in Oakland CA. Throughout her career as Family Practice physician, she has had the honor of caring for sickle cell patients with the compassion they often long for.
While her Sickle Cell disease has caused an early retirement from her clinical practice, her life is vibrant. She has developed an active presence on social media where she teaches a global audience about Sickle Cell. She created a group called “Sickle Cell Stories with Doctor Simone” on Facebook where she teaches many health management strategies not covered in the textbooks. Her teaching videos can be found on her YouTube channel “Sickle Cell Medical Advocacy-Dr Simone”
Dr. Simone is also a two-time number ONE Bestselling author of the book “A Doctor in a Patient’s Body” and her second book entitled “ALL Rise: The Sickle Cell Community vs. The Medical Establishment” In 2021 Dr. Simone started a charity organization, Sickle Cell Medical Advocacy Inc. training motivated members of the community to become medical advocates proficient in the US guidelines for the management of acute pain crises. Advocates virtually accompany patients to the emergency room and hospital and advocate on their behalf for quality care. Dr. Simone is determined to reshape the conversation about Sickle Cell disease management with her colleagues in the healthcare community so that people with Sickle Cell disease can live longer and thrive in spite of their disease.
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Adult, Child & Caregiver Patient Town Hall + Dinner (RSVPs Required)
Friday, June 16, 2023
7:30 PM – 9:30 PM East Coast USA Time