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International / Global Hemoglobinopathies in Different Countries

Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium

Sickle Cell Health Awareness, Perspectives, and Experiences Survey: US Patients/Caregivers

Sunday, June 18, 2023
10:55 AM – 11:10 AM East Coast USA Time
Live Stream

    Speaker(s)

  • Alan R. Anderson, MD

    Medical Doctor
    Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine
    University of South Carolina School of Medicine
    Greenville, South Carolina, United States

    Slides

    • First Author(s)

  • Alan R. Anderson, MD

    Medical Doctor
    Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine
    University of South Carolina School of Medicine
    Greenville, South Carolina, United States

    Slides

    • Corresponding Author(s)

  • Alan R. Anderson, MD

    Medical Doctor
    Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine
    University of South Carolina School of Medicine
    Greenville, South Carolina, United States

    Slides

    • Author(s)

  • Alan R. Anderson, MD

    Medical Doctor
    Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine
    University of South Carolina School of Medicine
    Greenville, South Carolina, United States

    Slides
  • RH

    Regina Hartfield, BA

    CEO and President
    Sickle Cell Disease Association of America Inc.
    Hanover, Maryland, United States

  • JJ

    John James, OBE

    Chief Executive
    Sickle Cell Society
    London, England, United Kingdom

  • BT

    Biba Tinga, MS

    President and Executive Director
    Sickle Cell Disease Association of Canada
    Toronto, Ontario, Canada

  • EI

    Elvie Ingoli, n/a

    President
    IST e.V., German Sickle Cell Disease and Thalassaemia Association
    Eschweiler, Nordrhein-Westfalen, Germany

  • Md

    Mariane de Montalembert, MD, PhD

    Medical Doctor
    Sickle Cell Center, Necker-Enfants Malades Hospital
    Paris, Ile-de-France, France

  • FC

    Fernando F. Costa, MD, PhD

    Medical Doctor
    Haematology and Haemotherapy Centre, School of Medicine, University of Campinas - UNICAMP
    Campinas, Sao Paulo, Brazil

  • WJ

    Wasil Jastaniah, MBBS

    Medical Doctor
    King Faisal Specialist Hospital & Research Center
    Jeddah, Makkah, Saudi Arabia

  • JK

    Joachim B. Kunz, MD

    Medical Doctor
    Department of Pediatric Oncology, Hematology and Immunology, Hopp Children’s Cancer Center (KiTZ) Heidelberg, University of Heidelberg
    Heidelberg, Baden-Wurttemberg, Germany

  • IO

    Isaac Odame, MD

    Hematology Section Head
    Division of Hematology/Oncology, The Hospital for Sick Children
    Toronto, Ontario, Canada

  • BL

    Belinda Lartey, MSc

    Associate Director
    Ipsos Healthcare
    London, England, United Kingdom

  • BI

    Baba PD Inusa, MD

    Medical Doctor
    Department of Paediatric Haematology, Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust
    London, England, United Kingdom

Disclosure(s):
Alan R. Anderson, MD: No relevant disclosure to display

Learning Objectives:

  • Upon completion, participant will be able to list the symptoms of sickle cell disease that frequently impact patients and caregivers in the US.
  • Upon completion, participant will be able to describe patients’ perceptions of care received from different types of healthcare professionals in the US.
  • Upon completion, participant will be able to summarize the impact of sickle cell disease on education/work obligations for patients and caregivers.