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FSCDR's 17th Annual SCD Research and Educational Symposium & 46th Nat'l SCD Scientific Meeting Main banner
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Highlights of the Symposium

Saturday, June 17, 2023
2:00 PM – 2:45 PM East Coast USA Time
Location: Grand Salons A-E

Live Stream

    Chair(s)

  • Susan Perrine, MD, SM

    Chief Medical Officer and Professor
    Phoenicia BioSciences, Boston University Chobanian & Avedisian School of Medciine
    Boston University Chobanian & Avedisian School of Medicine
    Weston, Massachusetts, United States

    • Co-Chair(s)

  • Deepika Darbari, MD (she/her/hers)

    Division of Hematology
    Center for Cancer and Blood Disorders, Children's National Hospital
    George Washington University School of Medicine
    Washington , District of Columbia, United States

Disclosure(s):
Susan P. Perrine, MD, SM: No financial relationships to disclose

Learning Objectives:

  • Describe reports of concern on access to medical care for sickle cell disease and adoption of TCD in children in the US
  • Describe proportions of US patients receiving Hydroxyurea, a proven beneficial therapy, and recently approved therapies
  • Describe an innovative method for assessing pain using animation without the burden of recalling numerical pain scores
  • Describe novel outcome measures and a non-opioid formulation explored in sickle mice

Presentations:

  • 2:00 PM – 2:15 PM East Coast USA Time
    My Sickle Cell Health Passport / RESPECT Program

    Speaker: Susan P. Perrine, MD, SM – Phoenicia BioSciences, Boston University Chobanian & Avedisian School of Medciine

  • 2:15 PM – 2:30 PM East Coast USA Time
    Innovation and Images from the Abstracts

    Speaker: Charles R. Jonassaint, PhD, MS – Center for Research on Health Care, University of Pittsburgh; Center for Behavioral Health and Smart Technology, University of Pittsburgh

  • 2:30 PM – 2:45 PM East Coast USA Time
    Discussion

    Speaker: Susan P. Perrine, MD, SM – Phoenicia BioSciences, Boston University Chobanian & Avedisian School of Medciine