Tweets by FSCDR's 17th Annual SCD Research and Educational Symposium & 46th Nat'l SCD Scientific Meeting

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Friday, June 16, 2023
8:00 AM – 6:00 PM East Coast USA Time
Registration Open

8:00 AM – 6:00 PM East Coast USA Time

Registration Open
Location: Grand Salons E-F Foyer

Favorite

10:00 AM – 5:00 PM East Coast USA Time
Exhibit Hall Open

10:00 AM – 5:00 PM East Coast USA Time

Exhibit Hall Open
Location: Grand Salons F-K and E-K Foyer

Favorite

12:00 PM – 12:45 PM East Coast USA Time
Welcome + The State of Sickle Cell Disease
Chair: Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research

12:00 PM – 12:45 PM East Coast USA Time

Welcome + The State of Sickle Cell Disease

Location: Grand Salons A-E

Chair: Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research

Favorite

Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research ### 1082876###Chair###President, Founder and Chief Health Officer###Foundation for Sickle Cell Disease Research###
Chair: Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research
###

12:00 PM – 12:10 PM East Coast USA Time

Welcome From FSCDR's President and Chief Health Officer

Location: Grand Salons A-E

Speaker: Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research

Favorite

Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research ### 1082876###Speaker###President, Founder and Chief Health Officer###Foundation for Sickle Cell Disease Research###
Speaker: Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research
###

12:10 PM – 12:20 PM East Coast USA Time

Welcome From FSCDR's Chairman of the Board

Location: Grand Salons A-E

Speaker: Avery Dial

Favorite

Avery Dial ### 2014284###Speaker#########
Speaker: Avery Dial
###

12:20 PM – 12:25 PM East Coast USA Time

Welcome From FSCDR's Medical Director & Hematologist-Oncologist

Location: Grand Salons A-E

Speaker: Gershwin T. Blyden, MD/PhD – Foundation for Sickle Cell Research

Favorite

Gershwin T. Blyden, MD/PhD – Foundation for Sickle Cell Research ### 1678457###Speaker###Physician###Foundation for Sickle Cell Research###
Speaker: Gershwin T. Blyden, MD/PhD – Foundation for Sickle Cell Research
###

12:25 PM – 12:35 PM East Coast USA Time

Welcome From FSCDR's Board Member
Location: Grand Salons A-E

Speaker: Betty S. Pace, MD – Augusta University

Favorite

Betty S. Pace, MD – Augusta University ### 1253331###Speaker###Professor###Augusta University###
Speaker: Betty S. Pace, MD – Augusta University
###

12:35 PM – 12:40 PM East Coast USA Time

Welcome From FSCDR's Chief Medical Officer & Neurosurgeon
Location: Grand Salons A-E

Speaker: Anthony J. Hall, MDCM – Academy of Neurosurgical Physicians, Inc

Favorite

Anthony J. Hall, MDCM – Academy of Neurosurgical Physicians, Inc ### 1082893###Speaker###President###Academy of Neurosurgical Physicians, Inc###
Speaker: Anthony J. Hall, MDCM – Academy of Neurosurgical Physicians, Inc
###

12:45 PM – 1:45 PM East Coast USA Time
Access to Care Keynote Presentation

12:45 PM – 1:45 PM East Coast USA Time

Universal Access to High Quality Sickle Cell Disease Care: Are We There Yet?

Location: Grand Salons A-E

Keynote Speaker: Biree Andemariam, MD – New England Sickle Cell Institute, University of Connecticut Health, Farmington, CT, USA

CE: 1

Favorite

Biree Andemariam, MD – New England Sickle Cell Institute, University of Connecticut Health, Farmington, CT, USA ### 1094282###Keynote Speaker###Professor of Medicine###New England Sickle Cell Institute, University of Connecticut Health, Farmington, CT, USA###
Keynote Speaker: Biree Andemariam, MD – New England Sickle Cell Institute, University of Connecticut Health, Farmington, CT, USA
###

1:45 PM – 2:00 PM East Coast USA Time
Break

1:45 PM – 2:00 PM East Coast USA Time

Break
Location: Grand Salons F-K

Favorite

2:00 PM – 4:00 PM East Coast USA Time
The Patient Symposium: Managing Pain, Sleep and Health-Related Quality of Life

CE: 2

2:00 PM – 4:00 PM East Coast USA Time

The Patient Symposium: Using Integrative Therapies, Sleep Interventions and Exercise to Manage SCD

Location: Grand Salons A-E

CE: 2

Favorite

Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US) ### 1634031###Chair###Associate Professor###Virginia Commonwealth University (Richmond, VA, US)###
Chair: Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US)
### she/her/hers

2:00 PM – 2:15 PM East Coast USA Time

Improving Sleep to Manage SCD

Location: Grand Salons A-E

Speaker: Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US)

Favorite

2:15 PM – 2:40 PM East Coast USA Time

Sleep Discussion with Audience

Location: Grand Salons A-E

Speaker: Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US)

Speaker: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency

Favorite

Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US) ### 1634031###Speaker###Associate Professor###Virginia Commonwealth University (Richmond, VA, US)###
Speaker: Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US)
### she/her/hers @@@ Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency ### 1886479###Speaker###Patient Engagement Coordinator/ Research Consultant ###Piedmont Health Services and Sickle Cell Agency ###
Speaker: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency
### she/her/hers

2:40 PM – 2:55 PM East Coast USA Time

Using integrative therapies, sleep interventions and exercise to manage Sickle Cell Disease

Location: Grand Salons A-E

Speaker: Laila Aziz Mahmood, MD MPH (she/her/hers) – Children's National Medical Center

Favorite

2:55 PM – 3:20 PM East Coast USA Time

Using integrative therapies, sleep interventions and exercise to manage Sickle Cell Disease

Location: Grand Salons A-E

Speaker: Laila Aziz Mahmood, MD MPH (she/her/hers) – Children's National Medical Center

Speaker: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency

Favorite

Laila Aziz Mahmood, MD MPH (she/her/hers) – Children's National Medical Center ### 1090626###Speaker###Attending Physician ###Children's National Medical Center###
Speaker: Laila Aziz Mahmood, MD MPH (she/her/hers) – Children's National Medical Center
### she/her/hers @@@ Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency ### 1886479###Speaker###Patient Engagement Coordinator/ Research Consultant ###Piedmont Health Services and Sickle Cell Agency ###
Speaker: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency
### she/her/hers

3:20 PM – 3:35 PM East Coast USA Time

What to know about exercise in SCD?

Location: Grand Salons A-E

Speaker: Joy Ogunsile (she/her/hers) – Memorial Regional Healthcare

Favorite

3:35 PM – 4:00 PM East Coast USA Time

Exercise Discussion with Audience

Location: Grand Salons A-E

Speaker: Joy Ogunsile (she/her/hers) – Memorial Regional Healthcare

Speaker: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency

Favorite

Joy Ogunsile (she/her/hers) – Memorial Regional Healthcare ### 1916745###Speaker###Medical Director ###Memorial Regional Healthcare ###
Speaker: Joy Ogunsile (she/her/hers) – Memorial Regional Healthcare
### she/her/hers @@@ Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency ### 1886479###Speaker###Patient Engagement Coordinator/ Research Consultant ###Piedmont Health Services and Sickle Cell Agency ###
Speaker: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency
### she/her/hers

3:15 PM – 3:30 PM East Coast USA Time
Coffee Break

3:15 PM – 3:30 PM East Coast USA Time

Coffee Break
Location: Grand Salons F-K

Favorite

4:00 PM – 5:30 PM East Coast USA Time
Investigational New Drug, Device and Therapeutics Symposium

4:00 PM – 5:30 PM East Coast USA Time

The Future is Now: Investigational New Drug and Therapeutics Symposium

Location: Grand Salons A-E

Favorite

4:00 PM – 4:05 PM East Coast USA Time

Introduction

Location: Grand Salons A-E

Speaker: Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals

Favorite

Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals ### 1886478###Speaker###Medical Director###Agios Pharmaceuticals###
Speaker: Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals
### he/him/his

4:05 PM – 4:15 PM East Coast USA Time

A phase 2a, randomized, open-label study to evaluate multiple dosing regimens of subcutaneous ALXN1820 in adult patients with sickle cell disease

Location: Grand Salons A-E

Speaker: Yang Dai, MD, PhD (he/him/his) – Alexion, AstraZeneca Rare Disease

Favorite

Yang Dai, MD, PhD (he/him/his) – Alexion, AstraZeneca Rare Disease ### 1916746###Speaker###Senior Medical Director###Alexion, AstraZeneca Rare Disease###
Speaker: Yang Dai, MD, PhD (he/him/his) – Alexion, AstraZeneca Rare Disease
### he/him/his

4:15 PM – 4:25 PM East Coast USA Time

Novo Nordisk in Sickle Cell Disease

Location: Grand Salons A-E

Speaker: Adam Wufsus, PhD (he/him/his) – Novo Nordisk, Inc.

Favorite

Adam Wufsus, PhD (he/him/his) – Novo Nordisk, Inc. ### 1982912###Speaker###Medical Director, Rare Blood Disorders###Novo Nordisk, Inc.###
Speaker: Adam Wufsus, PhD (he/him/his) – Novo Nordisk, Inc.
### he/him/his

4:25 PM – 4:35 PM East Coast USA Time

Autologous Cell Therapy Involving Zinc Finger Nuclease-mediated Gene Editing

Location: Grand Salons A-E

Speaker: Ben Hsu, MD, PhD (he/him/his) – Sangamo Therapeutics

Favorite

Ben Hsu, MD, PhD (he/him/his) – Sangamo Therapeutics ### 1916747###Speaker###Vice President, Clinical Sciences###Sangamo Therapeutics###
Speaker: Ben Hsu, MD, PhD (he/him/his) – Sangamo Therapeutics
### he/him/his

4:35 PM – 4:45 PM East Coast USA Time

Agios sickle cell disease clinical program

Location: Grand Salons A-E

Speaker: Sarah Gheuens, MD, PhD (she/her/hers) – Agios Pharmaceuticals

Favorite

Sarah Gheuens, MD, PhD (she/her/hers) – Agios Pharmaceuticals ### 1916748###Speaker###Head of R&D and Chief Medical Officer###Agios Pharmaceuticals###
Speaker: Sarah Gheuens, MD, PhD (she/her/hers) – Agios Pharmaceuticals
### she/her/hers

4:45 PM – 4:55 PM East Coast USA Time

A phase I/IIA Open-label Dose-Finding Study with Subsequent Double-blind, Placebo-controlled, Randomized Study of L-citrulline in Sickle Cell Disease Presenting to the Emergency Department in Vaso-occlusive Crisis (VOC) in Children, Adolescents and Young Adults

Location: Grand Salons A-E

Speaker: Suvankar Majumdar, MD (he/him/his) – Asklepion Pharmaceuticals

Favorite

Suvankar Majumdar, MD (he/him/his) – Asklepion Pharmaceuticals ### 1633998###Speaker###Presenter###Asklepion Pharmaceuticals###
Speaker: Suvankar Majumdar, MD (he/him/his) – Asklepion Pharmaceuticals
### he/him/his

4:55 PM – 5:05 PM East Coast USA Time

Pfizer Sickle Cell Disease Pipeline

Location: Grand Salons A-E

Speaker: Valerie Cachat, MSN, APRN, CPNP (she/her/hers) – Pfizer

Favorite

Valerie Cachat, MSN, APRN, CPNP (she/her/hers) – Pfizer ### 1970700###Speaker###Medical Director###Pfizer###
Speaker: Valerie Cachat, MSN, APRN, CPNP (she/her/hers) – Pfizer
### she/her/hers

5:05 PM – 5:15 PM East Coast USA Time

CSL889 (Hemopexin) and Vamifeport as Potential Therapeutics in Sickle Cell Disease

Location: Grand Salons A-E

Speaker: Paul Shore, MD, MS – CSL Behring

Favorite

Paul Shore, MD, MS – CSL Behring ### 1968834###Speaker###Clinical Program Director###CSL Behring###
Speaker: Paul Shore, MD, MS – CSL Behring
###

5:15 PM – 5:30 PM East Coast USA Time

Q&A

Location: Grand Salons A-E

Chair: Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals

Speaker: Yang Dai, MD, PhD (he/him/his) – Alexion, AstraZeneca Rare Disease

Speaker: Adam Wufsus, PhD (he/him/his) – Novo Nordisk, Inc.

Speaker: Ben Hsu, MD, PhD (he/him/his) – Sangamo Therapeutics

Speaker: Sarah Gheuens, MD, PhD (she/her/hers) – Agios Pharmaceuticals

Speaker: Suvankar Majumdar, MD (he/him/his) – Asklepion Pharmaceuticals

Speaker: Valerie Cachat, MSN, APRN, CPNP (she/her/hers) – Pfizer

Speaker: Paul Shore, MD, MS – CSL Behring

Favorite

Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals ### 1886478###Chair###Medical Director###Agios Pharmaceuticals###
Chair: Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals
### he/him/his @@@ Yang Dai, MD, PhD (he/him/his) – Alexion, AstraZeneca Rare Disease ### 1916746###Speaker###Senior Medical Director###Alexion, AstraZeneca Rare Disease###
Speaker: Yang Dai, MD, PhD (he/him/his) – Alexion, AstraZeneca Rare Disease
### he/him/his @@@ Adam Wufsus, PhD (he/him/his) – Novo Nordisk, Inc. ### 1982912###Speaker###Medical Director, Rare Blood Disorders###Novo Nordisk, Inc.###
Speaker: Adam Wufsus, PhD (he/him/his) – Novo Nordisk, Inc.
### he/him/his @@@ Ben Hsu, MD, PhD (he/him/his) – Sangamo Therapeutics ### 1916747###Speaker###Vice President, Clinical Sciences###Sangamo Therapeutics###
Speaker: Ben Hsu, MD, PhD (he/him/his) – Sangamo Therapeutics
### he/him/his @@@ Sarah Gheuens, MD, PhD (she/her/hers) – Agios Pharmaceuticals ### 1916748###Speaker###Head of R&D and Chief Medical Officer###Agios Pharmaceuticals###
Speaker: Sarah Gheuens, MD, PhD (she/her/hers) – Agios Pharmaceuticals
### she/her/hers @@@ Suvankar Majumdar, MD (he/him/his) – Asklepion Pharmaceuticals ### 1633998###Speaker###Presenter###Asklepion Pharmaceuticals###
Speaker: Suvankar Majumdar, MD (he/him/his) – Asklepion Pharmaceuticals
### he/him/his @@@ Valerie Cachat, MSN, APRN, CPNP (she/her/hers) – Pfizer ### 1970700###Speaker###Medical Director###Pfizer###
Speaker: Valerie Cachat, MSN, APRN, CPNP (she/her/hers) – Pfizer
### she/her/hers @@@ Paul Shore, MD, MS – CSL Behring ### 1968834###Speaker###Clinical Program Director###CSL Behring###
Speaker: Paul Shore, MD, MS – CSL Behring
###

5:30 PM – 6:30 PM East Coast USA Time
“Is Wall Street Still Interested in Sickle Cell Disease?” Panel

5:30 PM – 6:30 PM East Coast USA Time

“Is Wall Street Still Interested in Sickle Cell Disease?” Panel

Location: Grand Salons A-E

Chair: Ted W. Love, MD (he/him/his) – Global Blood Therapeutics

Panelist: Gerard Smith, MD – Deep Track Capital

Panelist: Jim Birchenough, MD (he/him/his) – Wells Fargo Biopharmaceutical Investment Banking

Favorite

Ted W. Love, MD (he/him/his) – Global Blood Therapeutics ### 1965883###Chair###Former CEO###Global Blood Therapeutics###
Chair: Ted W. Love, MD (he/him/his) – Global Blood Therapeutics
### he/him/his @@@ Gerard Smith, MD – Deep Track Capital ### 1970699###Panelist###Principal###Deep Track Capital###
Panelist: Gerard Smith, MD – Deep Track Capital
### @@@ Jim Birchenough, MD (he/him/his) – Wells Fargo Biopharmaceutical Investment Banking ### 1983797###Panelist###Vice Chairman###Wells Fargo Biopharmaceutical Investment Banking###
Panelist: Jim Birchenough, MD (he/him/his) – Wells Fargo Biopharmaceutical Investment Banking
### he/him/his

6:30 PM – 7:30 PM East Coast USA Time
FSCDR Welcome Reception

6:30 PM – 7:30 PM East Coast USA Time

FSCDR's Welcome Reception Sponsored by Medunik USA and CSL Behring - All Attendees Invited
Location: Dunes Sunrise Terrace

Sponsored By

Favorite

7:30 PM East Coast USA Time
Dinner On Your Own

7:30 PM East Coast USA Time

Dinner On Your Own

Favorite

7:30 PM – 9:30 PM East Coast USA Time
Adult Patient Town Hall & Dinner

7:30 PM – 9:30 PM East Coast USA Time

Adult, Child & Caregiver Patient Town Hall + Dinner (RSVPs Required)
Location: Grand Salons A-E

Panelist: Rae Blaylark – Sickle Cell Foundation of MN

Panelist: Simone C. Uwan MD, MD – Sickle Cell Medical Advocacy Inc.

Panelist: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency

Favorite

Rae Blaylark – Sickle Cell Foundation of MN ### 1082885###Panelist###President and CEO###Sickle Cell Foundation of MN###
Panelist: Rae Blaylark – Sickle Cell Foundation of MN
### @@@ Simone C. Uwan MD, MD – Sickle Cell Medical Advocacy Inc. ### 1671641###Panelist###Co-Founder and Director###Sickle Cell Medical Advocacy Inc.###
Panelist: Simone C. Uwan MD, MD – Sickle Cell Medical Advocacy Inc.
### @@@ Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency ### 1886479###Panelist###Patient Engagement Coordinator/ Research Consultant ###Piedmont Health Services and Sickle Cell Agency ###
Panelist: Justina G. Williams, MSW (she/her/hers) – Piedmont Health Services and Sickle Cell Agency
### she/her/hers