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Full Schedule

Full Schedule

  • Wednesday, June 14, 2023
  • 6:00 PM – 8:30 PM East Coast USA Time
    Healthcare Perspectives: County & State
  • Friday, June 16, 2023
  • 8:00 AM – 6:00 PM East Coast USA Time
    Registration Open
  • 10:00 AM – 5:00 PM East Coast USA Time
    Exhibit Hall Open
  • 12:00 PM – 12:45 PM East Coast USA Time
    Welcome + The State of Sickle Cell Disease
    Chair: Lanetta Bronte-Hall, MD, MPH, MSPH – Foundation for Sickle Cell Disease Research
  • 12:45 PM – 1:45 PM East Coast USA Time
    Access to Care Keynote Presentation
  • 1:45 PM – 2:00 PM East Coast USA Time
    Break
  • 2:00 PM – 4:00 PM East Coast USA Time
    The Patient Symposium: Managing Pain, Sleep and Health-Related Quality of Life
    Chair: Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US)
     CE: 2
  • 3:15 PM – 3:30 PM East Coast USA Time
    Coffee Break
  • 4:00 PM – 5:30 PM East Coast USA Time
    Investigational New Drug, Device and Therapeutics Symposium
    Chair: Ahmar U. Zaidi, MD (he/him/his) – Agios Pharmaceuticals
  • 5:30 PM – 6:30 PM East Coast USA Time
    “Is Wall Street Still Interested in Sickle Cell Disease?” Panel
  • 6:30 PM – 7:30 PM East Coast USA Time
    FSCDR Welcome Reception
  • 7:30 PM East Coast USA Time
    Dinner On Your Own
  • 7:30 PM – 9:30 PM East Coast USA Time
    Adult Patient Town Hall & Dinner
  • Saturday, June 17, 2023
  • 7:00 AM – 8:15 AM East Coast USA Time
    Breakfast
  • 7:00 AM – 5:00 PM East Coast USA Time
    Exhibit Hall Open
  • 7:00 AM – 6:00 PM East Coast USA Time
    Registration Open
  • 7:00 AM – 7:00 PM East Coast USA Time
    Poster Viewing
  • 8:15 AM – 8:30 AM East Coast USA Time
    2023 Scientific Chair Welcome
  • 8:30 AM – 9:15 AM East Coast USA Time
    Top Abstract Oral Presentations
    Moderator: Deepika S. Darbari, MD (she/her/hers) – Center for Cancer and Blood Disorders, Children's National Hospital
     CE: 0.75
  • 9:15 AM – 10:00 AM East Coast USA Time
    Networking Break
  • 10:00 AM – 12:00 PM East Coast USA Time
    Behavioral Psychology: School Success, Sleep, Pain Management Educational Session
    Chair: Cecelia Valrie, PhD (she/her/hers) – Virginia Commonwealth University (Richmond, VA, US)
    Moderator: Dima Hendricks, MA (she/her/hers) – University of Pittsburgh
     CE: 2
  • 10:00 AM – 12:00 PM East Coast USA Time
    Nursing Bootcamp Educational Session
    Co-Chair: Pat Corley, RN (she/her/hers) – Cayenne Wellness
    Co-Chair: Yvonne Carroll, RN, JD – St. Jude Children's Research Hospital
     CE: 2
  • 10:00 AM – 12:00 PM East Coast USA Time
    Organ Damage and other Cardiac Diseases in Sickle Cell Disease Educational Session
    Chair: Santosh L. Saraf, MD – University of Illinois at Chicago
     CE: 2
  • 12:00 PM – 1:00 PM East Coast USA Time
    Lunch
  • 12:00 PM – 1:00 PM East Coast USA Time
    Product Theater: A Discussion on a Treatment Option for Sickle Cell Disease
  • 12:00 PM – 1:00 PM East Coast USA Time
    Product Theater: Gene Therapy for Hemoglobinopathies: Translating Complex Science to Inform the Physician-Patient Dialogue, Sponsored by Vertex Pharmaceuticals
  • 1:00 PM – 2:00 PM East Coast USA Time
    Keynote Speaker
  • 2:00 PM – 2:45 PM East Coast USA Time
    Highlights of the Symposium
    Chair: Susan P. Perrine, MD, SM – Phoenicia BioSciences, Boston University Chobanian & Avedisian School of Medciine
    Co-Chair: Deepika S. Darbari, MD (she/her/hers) – Center for Cancer and Blood Disorders, Children's National Hospital
  • 2:45 PM – 3:30 PM East Coast USA Time
    Networking Break
  • 3:30 PM – 5:45 PM East Coast USA Time
    Curative Options in Sickle Cell Disease Plenary Session
    Chair: Courtney Fitzhugh, MD – National Heart, Lung, and Blood Institute, National Institutes of Health
     CE: 2
  • 4:15 PM – 4:30 PM East Coast USA Time
    Coffee Available (No Content Break)
  • 5:45 PM – 6:45 PM East Coast USA Time
    Live Poster Session
  • 7:30 PM – 9:30 PM East Coast USA Time
    FSCDR's Presidential Reception- Invitation Only
  • Sunday, June 18, 2023
  • 7:00 AM – 8:00 AM East Coast USA Time
    Breakfast
  • 7:00 AM – 3:30 PM East Coast USA Time
    Exhibit Hall Open
  • 7:00 AM – 3:30 PM East Coast USA Time
    Poster Viewing
  • 7:00 AM – 5:00 PM East Coast USA Time
    Registration Open
  • 8:00 AM – 9:00 AM East Coast USA Time
    Scientific Keynote Presentation
  • 9:00 AM – 10:15 AM East Coast USA Time
    An Update on Sickle Cell Disease from Federal Agencies
    Moderator: Deepika S. Darbari, MD (she/her/hers) – Center for Cancer and Blood Disorders, Children's National Hospital
     CE: 1.25
  • 10:15 AM – 11:15 AM East Coast USA Time
    Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium
    Chair: Andrew D. Campbell, MD (he/him/his) – Childrens National Hospital
     CE: 1
  • 10:30 AM – 10:45 AM East Coast USA Time
    Coffee Available (No Content Break)
  • 11:15 AM – 12:15 PM East Coast USA Time
    Unmet Need: Challenges Related to Research and Clinical Management of SCD Pain Plenary Session
    Co-Chair: Inna Belfer, MD, PhD – NIH/NCCIH
    Co-Chair: Deepika S. Darbari, MD (she/her/hers) – Center for Cancer and Blood Disorders, Children's National Hospital
     CE: 1
  • 12:15 PM – 1:15 PM East Coast USA Time
    Lunch
  • 1:15 PM – 2:45 PM East Coast USA Time
    Oral Abstract Presentation Session I Psychosocial
    Moderator: Julia A. O'Brien, PhD, RN – School of Nursing, University of Pittsburgh
     CE: 1.5
  • 1:15 PM – 2:45 PM East Coast USA Time
    Oral Abstract Presentation Session l Basic Science / Health Services
    Moderator: Susan P. Perrine, MD, SM – Phoenicia BioSciences, Boston University Chobanian & Avedisian School of Medciine
    Moderator: Yugal Goel, PhD – University of California, Irvine
     CE: 1.5
  • 1:15 PM – 2:45 PM East Coast USA Time
    Oral Abstract Presentation Session l Health Services
    Moderator: André M. Harris, MSW (he/him/his) – Sickle Cell Association of Houston
    Moderator: Donna R. McCurry, RN, APRN, FNP-BC (she/her/hers) – University Health Kansas City
     CE: 1.5
  • 2:45 PM – 3:00 PM East Coast USA Time
    Coffee Break
  • 3:00 PM – 4:30 PM East Coast USA Time
    Oral Abstract Presentation Session ll Clinical Research
    Moderator: Claudia R. Morris, MD (she/her/hers) – Emory University School of Medicine
    Moderator: Dunia Hatabah, MD – Emory University
     CE: 1.5
  • 3:00 PM – 4:30 PM East Coast USA Time
    Oral Abstract Presentation Session ll Health Services
    Moderator: Nizar Tangour, MD, MS – NYC Health + Hospitals/Metropolitan
    Moderator: Sophia Horiuchi – Sickle Cell Data Collection Program
     CE: 1.5
  • 3:00 PM – 4:30 PM East Coast USA Time
    Oral Abstract Presentation Session ll Trials / Clinical Epidemiology
    Moderator: William Hobbs – Vertex Pharmaceuticals, Inc
    Moderator: Ektha Parchuri, MPH (she/her/hers) – University of Pittsburgh School of Medicine
     CE: 1.5